HAE Australasia and Professor Connie Katelaris have recorded this video to answer your questions about HAE and COVID-19, and provide information on current and new treatments, clinical trials, and announce a new support service available to HAE patients in Australia and New Zealand. https://youtu.be/FgO-8f96iqg HAE Australasia would like to thank CSL Behring for their support [...]
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The latest edition of The Brady Club Activity Book is ready to send out. If your child would like to receive a copy simply sign them up here
The future could be a capsule rather than a needle to prevent HAE attacks. Right now, patients are being enrolled in the APeX-S study, a worldwide clinical research study evaluating the safety and effectiveness of an investigational oral medication that may prevent hereditary angioedema (HAE) attacks. If you have HAE, have regular attacks and are [...]
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HAE Australasia ran a very successful media campaign through Palin Communications to help raise awareness of Hereditary Angioedema (HAE), and rare diseases in general on Rare Disease Day. Here are just a few of the interviews that took place in major and local papers, radio, television and online. Thank you to all the brave patient [...]
The Brady Club is an online safe space customized for children diagnosed with HAE and their siblings. We hope this page will help youngest HAE patients to better understand, manage, and cope with their disease while offering fun ways for them to feel inspired, empowered, and connected to other kids who share their questions, dreams [...]
As Australia's most trusted and recognised provider of the lifesaving 24/7 Emergency Response Service and [...]
The first HAEi Youngsters Camp was held in Frankfurt in early August. Most of the youngsters hadn't met each other before, and they didn't need much encouragement in connecting and making lifelong friendships with one another. Here is some feedback from the Australasians who took part: The trip was one of the most amazing things that [...]
