Global Perspectives #2 2024 is out now!

By |2024-07-10T07:49:01+00:0010 Jul 2024|

The second edition of the HAEi Global Perspectives magazine for 2024 is available for download. This issue includes summaries of many of the inspiring advocacy activities taking place around the world and other exciting updates including: Welcome to the 100th member country of the HAEi Family We’ve been more #active4HAE than ever before for hae day :-) 2024 [...]

Brady Club Activity Books now ONLINE

By |2024-07-03T10:05:24+00:003 Jul 2024|

We are so excited to announce the Brady Club Activity Books are now available on our website! They are available free to access online or download and print to do activities at home. You will find the Brady Club books under our Youth Space tab. Or click the book above!

Q&A Video with Prof. Katelaris

By |2020-06-24T01:40:29+00:0024 Jun 2020|

HAE Australasia and Professor Connie Katelaris have recorded this video to answer your questions about HAE and COVID-19, and provide information on current and new treatments, clinical trials, and announce a new support service available to HAE patients in Australia and New Zealand. HAE Australasia would like to thank CSL Behring for their support [...]

Clinical Research Study Opportunity – Australia and New Zealand

By |2018-08-08T06:21:33+00:0024 Jul 2018|

The future could be a capsule rather than a needle to prevent HAE attacks. Right now, patients are being enrolled in the APeX-S study, a worldwide clinical research study evaluating the safety and effectiveness of an investigational oral medication that may prevent hereditary angioedema (HAE) attacks. If you have HAE, have regular attacks and are [...]

Rare Disease Day 2018

By |2018-03-07T03:43:59+00:002 Mar 2018|

HAE Australasia ran a very successful media campaign through Palin Communications to help raise awareness of Hereditary Angioedema (HAE), and rare diseases in general on Rare Disease Day. Here are just a few of the interviews that took place in major and local papers, radio, television and online. Thank you to all the brave patient [...]

The Brady Club

By |2018-01-28T02:27:54+00:0028 Jan 2018|

The Brady Club is an online safe space customized for children diagnosed with HAE and their siblings. We hope this page will help youngest HAE patients to better understand, manage, and cope with their disease while offering fun ways for them to feel inspired, empowered, and connected to other kids who share their questions, dreams [...]

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