Oral treatment for HAE Attacks: Deucrictibant Study Currently recruiting people with HAE for this trial of a new oral treatment to use for HAE attacks. It works in a similar fashion to Icatibant only there is no injection – it is a capsule that has a quick onset of action. The following are the criteria: [...]
There are now more resources in the HAE Australasia Webinar Hub with the addition of the presentations from our Patient and Carer Webinar 1. There is a resource link for the first part of the Webinar - HAE Basics, Treatment and Trials and a link for the second part of the Webinar - HAE Australasia [...]
Check out our new Webinar Hub We have just published a brand-new Resource called 'Webinar Hub' On this page you will find our shiny new Webinar Hub with information and presentations from our Patient and Carer Webinar held on the 31st of July. Go to the Resources tab and select Webinars for information on Women [...]
We now have information about current HAE Patient Clinical Trials on our website. Please go to the Patient and Carer page on the website and click the Clinical Trials tab at the bottom of the left side menu OR click this link. Clinical Trials are an important step in progressing treatment options for our Patients. [...]
The second edition of the HAEi Global Perspectives magazine for 2024 is available for download. This issue includes summaries of many of the inspiring advocacy activities taking place around the world and other exciting updates including: Welcome to the 100th member country of the HAEi Family We’ve been more #active4HAE than ever before for hae day :-) 2024 [...]
We are so excited to announce the Brady Club Activity Books are now available on our website! They are available free to access online or download and print to do activities at home. You will find the Brady Club books under our Youth Space tab. Or click the book above!
HAE Australasia and Professor Connie Katelaris have recorded this video to answer your questions about HAE and COVID-19, and provide information on current and new treatments, clinical trials, and announce a new support service available to HAE patients in Australia and New Zealand. https://youtu.be/FgO-8f96iqg HAE Australasia would like to thank CSL Behring for their support [...]
Read the latest HAE news from around the globe here
The latest edition of The Brady Club Activity Book is ready to send out. If your child would like to receive a copy simply sign them up here
The future could be a capsule rather than a needle to prevent HAE attacks. Right now, patients are being enrolled in the APeX-S study, a worldwide clinical research study evaluating the safety and effectiveness of an investigational oral medication that may prevent hereditary angioedema (HAE) attacks. If you have HAE, have regular attacks and are [...]
