The MedicAlert® Foundation Benevolent Program for HAE Patients

By |2018-01-13T06:21:36+00:0013 Jan 2018|

                                                                                       As Australia's most trusted and recognised provider of the lifesaving 24/7 Emergency Response Service and [...]

HAEi Youngsters Camp

By |2017-11-22T05:20:36+00:0022 Nov 2017|

The first HAEi Youngsters Camp was held in Frankfurt in early August. Most of the youngsters hadn't met each other before, and they didn't need much encouragement in connecting and making lifelong friendships with one another. Here is some feedback from the Australasians who took part: The trip was one of the most amazing things that [...]

Sandra Eriksen’s Story of Walking the Camino and the HAEI Global Conference

By |2017-04-07T08:25:28+00:004 Jul 2016|

Buen camino! Good walk – or enjoy the journey - that´s how everyone greets each other on Spain´s historic Camino de Santiago. And we had the privilege of joining 80 others from the global HAE community on a three-day walk that took us through beautiful countryside to the magnificent cathedral at Santiago de Compostela, where [...]

Living With HAE Workshop presented by Dr Chris Basten

By |2017-10-05T09:17:43+00:009 May 2016|

Are you or anyone in your family finding it hard to cope with HAE? Do you sometimes struggle to remain positive living with HAE? Would you like the tools to help you cope with HAE? Come and meet with others that share your story. HAE Australasia is teaming up with Dr Chris Basten Clinical Psychologist [...]

Join the Global HAE Walk

By |2017-04-04T08:04:08+00:0028 Apr 2016|

Quite a number of people have told HAEi that they would really have liked to participate in the Camino Walk in northern Spain but are unable for one reason or the other. Therefore they have arranged a global HAE walk. It works in this very simple way: You can participate wherever you are. All you need to do is [...]

We Need Your Help

By |2017-04-04T08:04:08+00:008 Apr 2016|

Hands up who wants better access to more treatments!!! The HAE Patient Registry can make that happen. Our pre-budget submission is asking the government to slice us a little of the budget pie so we can make it a reality by helping to fund the project. We are asking patients to simply print off the [...]

C1 Esterase Inhibitor Concentrate in Australia

By |2017-04-04T08:04:08+00:005 Feb 2016|

On 11 December 2015 the Jurisdictional Blood Committee (JBC) considered recommendations by the Medical Services Advisory Committee (MSAC) in relation to the proposed addition of C1 esterase inhibitor concentrate to the national arrangements for supply and funding of blood products administered by the National Blood Authority (NBA). JBC have agreed to the addition of C1 [...]

Managing Your Childs HAE at School

By |2017-10-05T09:19:18+00:0017 Dec 2015|

It is with a mix of apprehension and excitement that parents send their child off to school. For parents of children with HAE, there are added concerns about how to approach their child’s school. On our Resources page, you’ll find some materials to help you and the school work together. These are provided only as a [...]

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