Welcome to HAE Australasia
HAE Australasia is a not for profit patient advocacy organisation, dedicated to providing support to Australian and New Zealand HAE patients and their families, as well as raising awareness of hereditary angioedema resulting from C1-inhibitor deficiency. HAE Australasia has been founded by HAE patients and HAE patient caregivers.
At HAE Australasia, HAE stands for more than Hereditary Angioedema;
- Hope for the future
- Advocacy for better treatment options
- Education for patients and care-givers
We hope that this website helps to answer some of the questions you may have about Hereditary Angioedema. Whether you are a sufferer yourself, are newly diagnosed, not yet diagnosed, or know someone who is a sufferer, you are not alone. If you do not find answers to your questions, or you would like a confidential chat, please get in touch with us. We are here to support you.
Don’t forget to check back regularly for updates on planned patient meetings, current studies taking place and other news.
Please don’t hesitate to contact us for any further information.
Sign up and become a member of HAE Australasia
Latest News
Issue 26 of the Brady Club Activity Books is out now!!!
Great news. We have just updated the website to include the newest Brady Club Activity Book - Issue [...]
Additional Sites for Deucrictibant Trial
Great news, there are now more sites for the Deucrictibant study in Melbourne. We really need as many [...]
Upcoming Events
ASCIA Conference
HAE Australasia will have an information booth set up at the 34th ASCIA Annual Conference. The conference will be held at the Adelaide Convention Centre from Tuesday 3rd to Friday 6th September 2024.
HAEi Global Leadership Workshop
The HAE Australasia team will be attending the HAEi Global Leadership Workshop (GLW) is being held in Copenhagen from the 4th to the 6th of October 2024. The theme of the Workshop is “Navigating the Future” and will be attended by Member Organisations, key HAE Physicians/Scientists, and industry representatives from across the globe.
Global Angioedema Forum (GAF)
Patient Story
Emily’s Story.
“I want people to be aware of HAE and that it does exist, and it may be more common than you think..”
Read more of this story ..
hae day :-) 2024 was held on the 16th of May
The worldwide HAE community took 179,238,217 steps in 2024 which equals 3.4 trips around the globe. There were 49 countries who participated in over 16,000 events. This is a remarkable achievement
hae day :-) encourages the HAE community to participate in various types of activities; for physical health and wellbeing. People are able to participate in anything from running and swimming to painting or reading a book. Activity time is reported on haeday.org and then converted into steps, Participants are also able to earn badges by participating in these activities, recording them and even sharing photos of their activities.
Teams are always most welcome. Look out for information about how you can get involved in 2025.