Youth Resource Kit
We believe in empowering HAE youngsters to understand their health. By equipping youngsters with knowledge about HAE, we enable them to take charge of their well-being, fostering confidence and independence. As HAE youngsters learn to navigate life with HAE, they also become advocates for one another, creating a supportive community that thrives on shared experiences and collective strength.
You will find lots of Handy Accessible Educational resources below to help navigate day to day life.
Resources – From HAEi Youngsters
Here you will find a simple to follow, information graphic about HAE and a simple way to explain it. Helpful for your own understanding but also super handy when trying to share information about HAE with friends.
HAEi Newsletters are a great way for your to stay informed about what is happening around the globe when it comes to HAE Youngsters. You are able to sign up to receive notifications when a new newsletter is released so you don’t need to go searching for them – how great is that?
HAEi have started releasing a regular podcast to bring you conversations about life, adventures, and advocacy. This podcast is for patients and carer’s. They are very keen to hear your thoughts and even get you involved if you are keen.
HAEi Youngsters created a series of six postcards destined to resonate with the global Youngsters’ Community. You are able to download the postcards and share some love. What a great way to connect with other youngsters in the community or even just friends closer to home.
Telling anyone about your HAE can be scary, particularly to people who are really important to us. Its easy to overthink and questions if they will understand, or will they be accepting of your HAE.
The truth is, often its the people who do not have HAE that are more scared as they are not sure how to react or what to do in an attack.
The HAEi team have put together an information page, with helpful blogs, to help you navigate relationships and HAE. They would also like to hear from you if you have any helpful hints and tips for others.