Patient and Carer Webinars

Explore Our Expert-Led Webinars and Presentations

Welcome to our Webinar Hub, where you can access a wealth of knowledge from our recent webinars. Designed with our members in mind, these sessions are your gateway to in-depth information and insights on crucial topics that impact our patients and their families.

Why Engage with Our Content?

Stay Informed: Our webinars cover the latest developments and updates in HAE, ensuring you are always up-to-date with current trends and advancements.
Learn from Experts: Each session features presentations from experts in HAE, providing you with valuable knowledge and practical advice.
Connect with the Community: HAE is a rare illness and we know how isolated our community can feel. These webinars are an opportunity to connect with other like-minded individuals and learn from shared experiences.

Webinar Highlights:

HAE Basics & Updates: Discover the fundamentals of HAE, recent clinical trials, and the latest updates on medications. We also delve into the details of our youth group and its impact.
Women, Pregnancy, and Children with HAE: Gain insights into managing HAE through various life stages, with a focus on women, pregnancy, and children.
Coming soon: Doing life with HAE. Using the travel app, answers to common ‘What If’ questions like if I have to have to have invasive dental work, should I have prophylactic treatment etc., how to track your attacks and an update on our Youth Program.

We invite you to explore our recorded webinars and downloadable presentations. Dive into the content at your own pace and find the information that matters most to you.

Get Involved

Your feedback drives our content. If you have topics you’re passionate about or questions you need answered, let us know. We are committed to addressing your needs and fostering a supportive, informed community. Click here to complete our Webinar Hub Hot Topics form