Hi Kids, Do you have a Young HAEro in your life? A Young HAEro is someone who helps look after you when you are unwell from your HAE attacks. They may be a supportive sibling, a young relative or a friend. They might care for you by holding your hand while you have a needle, [...]
HAE Australasia has reviewed Australia's performance against the World Allergy Organisations set of 20 recommendations for the management of HAE. The result of our analysis demonstrates the need for major improvement. We are requesting that the Australian Federal Government provide our organisation, approximately $42,300 over a 5 year period to partly cover the costs of projects that [...]
Go here(link is external) to see how you can support this great event.
This Christmas, give the gift of a donation to HAE Australasia. Not only will you be helping to improve the quality of life for those living with Hereditary Angioedema (HAE), you will also help to spread the awareness of HAE in the community and the recipient will feel proud that they are making a difference to the [...]
On Saturday November 22nd HAE patients and families gathered in Melbourne. Twenty one members of HAE Australasia enjoyed a warm Melbourne day and a most enjoyable lunch. It was great to get to know the new faces and to share their stories. Fiona, Lou and Anne as Board members provided news of HAE treatments but our [...]
Help us design our 2015 HAE Day T-Shirt! Help us design a T-Shirt to celebrate HAE Day 2015 and you could win! Simply enter using your own design that includes this HAE Day logo and our website address www.haeaustralasia.org.au and the winning entry will receive a $150 Red Balloon voucher! Full entry criteria and terms and conditions: The T-Shirt design is [...]
HAE Australasia was represented at the ASCIA Conference held in Melbourne by board members Louise and Anne. The ASCIA 2014 Annual Conference, ran from Wednesday 10th to Saturday 13th September. The conference program featured presentations by speakers from the USA, UK and Australasia on a range of topics pertinent to allergy and other immune diseases. It also included [...]
While the ASCIA 2014 Conference discusses many diseases and conditions we like to think it was all about HAE. And I have to say there was many other issues discussed in the lecture theaters But in my opinion the brightest and most eye catching stand in the exhibition hall without doubt was hosted by Shire and myHAE smartphone companion. myHAE is [...]
The 2014 Global conference in Washington DC was a wonderful experience and I’m incredibly grateful to HAEi for organizing it. They put together an extremely memorable event. During the conference I was given many opportunities that I wouldn’t have had otherwise. It was great to meet and talk to so many other patients - especially [...]
Setting New Standards was the focus of the 2014 HAEi Global Conference in Washington D.C. HAEi represents 37 countries worldwide and 26 countries were present at the meeting. The primary mission of HAEi is to provide information and technical assistance that enables a timely diagnosis and optimal treatment, as well as research in HAE. Of [...]