Emily’s Story

By |2020-10-13T08:44:44+00:0013 Oct 2020|

When did you experience your first HAE attack, and how old were you? In 2018 I was 19 when I first experience symptoms of HAE.  I had just moved to Perth to start my Nursing studies at University. I was in my first semester of study. Can you tell us what the experience/attack was like? [...]

Rare Disease Day 2018

By |2018-03-07T03:43:59+00:002 Mar 2018|

HAE Australasia ran a very successful media campaign through Palin Communications to help raise awareness of Hereditary Angioedema (HAE), and rare diseases in general on Rare Disease Day. Here are just a few of the interviews that took place in major and local papers, radio, television and online. Thank you to all the brave patient [...]

Living With HAE Workshop presented by Dr Chris Basten

By |2017-10-05T09:17:43+00:009 May 2016|

Are you or anyone in your family finding it hard to cope with HAE? Do you sometimes struggle to remain positive living with HAE? Would you like the tools to help you cope with HAE? Come and meet with others that share your story. HAE Australasia is teaming up with Dr Chris Basten Clinical Psychologist [...]

Join the Global HAE Walk

By |2017-04-04T08:04:08+00:0028 Apr 2016|

Quite a number of people have told HAEi that they would really have liked to participate in the Camino Walk in northern Spain but are unable for one reason or the other. Therefore they have arranged a global HAE walk. It works in this very simple way: You can participate wherever you are. All you need to do is [...]

We Need Your Help

By |2017-04-04T08:04:08+00:008 Apr 2016|

Hands up who wants better access to more treatments!!! The HAE Patient Registry can make that happen. Our pre-budget submission is asking the government to slice us a little of the budget pie so we can make it a reality by helping to fund the project. We are asking patients to simply print off the [...]

C1 Esterase Inhibitor Concentrate in Australia

By |2017-04-04T08:04:08+00:005 Feb 2016|

On 11 December 2015 the Jurisdictional Blood Committee (JBC) considered recommendations by the Medical Services Advisory Committee (MSAC) in relation to the proposed addition of C1 esterase inhibitor concentrate to the national arrangements for supply and funding of blood products administered by the National Blood Authority (NBA). JBC have agreed to the addition of C1 [...]

Managing Your Childs HAE at School

By |2017-10-05T09:19:18+00:0017 Dec 2015|

It is with a mix of apprehension and excitement that parents send their child off to school. For parents of children with HAE, there are added concerns about how to approach their child’s school. On our Resources page, you’ll find some materials to help you and the school work together. These are provided only as a [...]

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