Great news. We have just updated the website to include the newest Brady Club Activity Book - Issue 26. You can find it under the HAE Young People tab - Brady Club Activity Books or go straight to it by clicking here !! Have fun :)
Great news, there are now more sites for the Deucrictibant study in Melbourne. We really need as many patients as possible to sign up for the study. This will help us ensure there are more treatment options available into the future for ALL. Don't forget you can be part of this study if you are [...]
We are excited to let you know the Deucrictibant study is now entering Phase 3 and open label studies in order to hopefully have it registered in the future. Deucrictibant is a painless, effective oral treatment for acute attacks and we are calling on patients to register and be part of the study now. This [...]
Our fabulous Fiona recently did an interview with ACT Person of the Year 2024 winner, Megan Gilmour on her pod cast MissingSchool - episode 11. In the episode, Fiona shares her journey with hereditary angioedema (HAE), highlighting challenges faced by children such as delayed diagnosis, school absences, stress triggers, and mental health issues. She emphasises [...]
The 2024 end of year news letter is now live on our website for you to read. Get the run down on what we have been up to this year, what we have planned for 2025, clinical trials information as well as tip and links to make life with HAE that little bit easier. Check [...]
Exciting news - the latest issue of the Brady Club Activity Books - Issue 25 - is now live on the website. Click here to see the issue NOW
We have now added our third Patient and Carer Webinar for 2024 to the Webinar Hub. I am working on updating the recording so stay tuned for that soon.
We know that planning a trip or relocating can come with its own set of challenges, especially for those living with Hereditary Angioedema (HAE). That's why we’re thrilled to introduce a new resource to the HAE Australasia website designed specifically to support HAE patients and their families during travel or relocation! This resource is designed [...]
Deucrictibant is a proposed oral, on demand, treatment for HAE attacks. There is currently a study underway - The Deucrictibant Study – and they are open for recruitment of patients now. The team are looking for patients aged over 12 to participate in the study. Patients can be on long term prophylaxis as long as [...]
EXCITING NEWS!!! The 2025 HAEi Regional Conference will be held in Manila, Philippines from the 7th to the 9th of March 2025. Members are now able to apply for a Travel Grant to attend this conference by following this link. In order to be eligible for a Travel Grant, applicants must be: a part of [...]